Disability Discrimination

Johnny T. and Lihn N. v. Vy Chi Nguyen, MD, et al.

Despite advances in education, awareness, and legal protections, people living with HIV continue to face stigma and discrimination in critical areas such as health care. The Americans with Disabilities Act (ADA) prohibits medical providers from discriminating against potential or actual patients based on their disabilities.Continue reading Johnny T. and Lihn N. v. Vy Chi Nguyen, MD, et al.

DREDF Comments on Proposed Rule – Genetic Information Nondiscrimination Act

January 28, 2016                            

Submitted electronically to www.regulations.gov

Bernadette Wilson
Acting Executive Officer
U.S. Equal Employment Opportunity Commission
131 M Street NE
Washington DC 20507

Re:   Comments on Proposed Rule, Genetic Information Nondiscrimination Act, RIN 3046–AB02
Continue reading DREDF Comments on Proposed Rule – Genetic Information Nondiscrimination Act

Comments on Federal Health IT Strategic Plan 2015-2020

February 6, 2015

Via Electronic Submission
Dr. Karen DeSalvo, M.D.
National Coordinator for Health Information Technology
U.S. Department of Health and Human Services
200 Independence Avenue SW, Suite 729D
Washington, D.C. 20201

Re: Federal Health IT Strategic Plan 2015-2020

Dear Dr. DeSalvo:

Thank you for the opportunity to comment on the draft Federal Health IT Strategic Plan 2015-2020. The Disability Rights Education and Defense Fund (DREDF) is a national law and policy center that advances the civil and human rights of people with disabilities through legal advocacy, training, education, and public policy and legislative development. We strongly support the potential of Health IT to promote healthcare policy goals that are important to the disability community. These goals include increasing consumer participation, promoting the range of care coordination that is often needed by those with complex disabilities and multiple chronic conditions, and the gathering of accurate information about the breadth and degree of healthcare disparities experienced by people with various disabilities. For DREDF, the achievement of these goals requires Health IT to prioritize two fundamental things: first, data capture regarding an individual’s disability status, and information concerning the individual’s corresponding reasonable accommodations and policy modification needs, and second, electronic health records that are truly accessible to consumers with communication and print disabilities, and their families and personal assistants as appropriate.
Continue reading Comments on Federal Health IT Strategic Plan 2015-2020

It’s What We Hoped Would Happen: HEALTHCARE STORIES

mlbIt’s absolutely satisfying to see DREDF’s HEALTHCARE STORIES videos make their way into the hands of our primary target audiences: providers of healthcare services and medical educators. On January 24, 2014, Mary Lou Breslin will screen a selection of our HEALTHCARE STORIES at the University of California, San Francisco, one of the leading medical centers and schools in the US.


January 24, 2014
12:00 – 1:00
Cole Hall

Reception to follow

CRPD Hearing in the United States Senate

CRPD stickerNovember 5th at 2:30 pm
Dirksen Senate Office Building, Room SD-419
You can RSVP for the hearing here This will help us ensure enough room capacity for all advocates!

WE NEED YOUR HELP!
The Marathon is almost over: the end is in sight!
NOW is the time to have our voices be heard!
Continue reading CRPD Hearing in the United States Senate

Information Regarding Nondiscrimination in Health Programs

September 30, 2013

Via online submission to www.regulations.gov

U.S. Department of Health and Human Services
Office for Civil Rights
Attention: 1557 RFI (RIN 0945-AA02),
Hubert H. Humphrey Building, Room 509F,
200 Independence Avenue SW.
Washington, DC 20201

Re: Docket No. HHS-OCR-2013-0007 (Request for Information RegardingNondiscrimination in Certain Health Programs or Activities)

DREDF and colleagues submit extensive comments to US Department of Health and Human Services Office for Civil Rights on Section 1557 of the Affordable Care Act, which prohibits discrimination in healthcare. Our comments were endorsed by fifty–seven diverse disability rights, health policy, consumer advocacy, racial and ethnic health disparity, public health, and research organizations nationwide.

Single Streamlined Insurance Marketplace Application

February 28, 2013

Submitted online at www.regulations.org

Marilyn Tavenner Acting Administrator
Centers for Medicare & Medicaid Services
Department of Health and Human Services

Re: CMS_FRDOC_0001-1121
Single Streamlined Insurance Marketplace Application

Dear Administrator Tavenner:

The Disability Rights Education and Defense Fund (DREDF) appreciates the opportunity to submit comments on the proposed single streamlined Insurance Market Application. DREDF is a leading national law and policy center that works to advance the civil and human rights of people with disabilities through legal advocacy, training, education, and public policy and legislative development. We are committed to eliminating barriers and increasing access to insurance coverage and effective healthcare for people with disabilities, and eliminating persistent health disparities that affect the length and quality of their lives.
Continue reading Single Streamlined Insurance Marketplace Application

Statement on Senate CRPD Vote

Mike Lee on the Senate FloorDREDF Deeply Disappointed by US Senate Opposition to Global Disability Rights Treaty

Despite the support of over 300 disability rights and veterans organizations, the US Senate failed to ratify the United Nations Convention on the Rights of Persons with Disabilities (CRPD) today, with a final vote of 61 Senators in support and 38 Senators opposed. By not ratifying the Treaty, the US fails to advance the human rights principles it once championed in the Americans with Disabilities Act of 1990, the landmark disability civil rights law upon which the CRPD is largely based.
Continue reading Statement on Senate CRPD Vote

LAAC Comments on Mandatory E-Filing

January 23, 2013

Attn: Invitations to Comment
Administrative Office of the Courts
455 Golden Gate Ave.
San Francisco, CA 94102
invitations@jud.ca.gov

Re: Public Comment re: Item W13-05,
Mandatory E-Filing: Uniform Rules To Implement Assembly Bill 2073

To Whom It May Concern:

I am writing on behalf of the Legal Aid Association of California (LAAC) to provide public comment to the Judicial Council as it considers the recommendations of the Mandatory E-filing Working Group.
Continue reading LAAC Comments on Mandatory E-Filing

The California Legislature Passed Senate Bill 1186

Despite efforts by Californians with disabilities, DREDF, and other advocacy organizations, the California legislature passed Senate Bill 1186, which will diminish the rights of people with disabilities. On September 14, a coalition of disability rights organizations sent a letter to Governor Brown seeking an opportunity to share our grave concerns with him before he made a decision on whether or not to sign the bill. Unfortunately, the governor signed SB 1186 on September 19. We will continue our efforts to mute the impact of this unjust law.