Research and Data Collection


Research and Data Collection on Disability and Health

Prevalence of inaccessible medical examination equipment and other barriers in provider offices

Identification of people with disabilities in the healthcare context so the presence of unmet needs and discriminatory barriers can be tracked

  • Health Disparity Research and Data Collection (PDF)
    We drafted a memorandum on Section 4302 of the Patient Protection and Affordable Care Act in relation to disability related data collection. (April 2011)
  • Proposed ACA disability data collection standards (PDF)
    We strongly support the US Department of Health and Human Services proposal to use a standard set of
    questions on disability that span all federal surveys that gather demographic data. This is a significant step in strengthening the capacity for comparison between findings of different survey instruments. (August 1, 2011)

Health disparities experienced by people with disabilities