Focusing on widespread barriers to care, these three, short video excerpts from our acclaimed HEALTHCARE STORIES series feature stories about inaccessible examination tables and weight scales and healthcare provider misperceptions and stereotypes. Advocates and practitioners alike recount their personal experiences and recommend actions for improving care. These downloadable videos present an all-important human perspective and affirm the barriers to care identified in a decade of research.
Continue reading Barriers and Solutions — Three Short Videos
Elizabeth Grigsby lives in San Francisco, California. An advocate with a non-profit organization, she has cerebral palsy and uses a motorized wheelchair.
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Luise Custer lives in San Francisco, California and is Charlie Tygiel’s mother. Charlie, who has developmental disabilities including a seizure disorder, shares a home with roommates in Santa Cruz, California.
Continue reading Luise Custer and Charlie Tygiel
Denise Sherer Jacobson, a writer and disability educator, lives in Oakland, California. She has cerebral palsy and uses a motorized wheelchair. She is married and has an adult son who is 25.
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Fred Nisen, an attorney with a statewide nonprofit legal organization, lives in Berkeley, California. He has cerebral palsy and uses a motorized wheelchair.
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Aaron Reetz, his father, Gordon Reetz and step-mother, Susan Lee live in the San Francisco Bay Area. Aaron is autistic and has developmental disabilities. Dr. Clarissa Kripke is on the clinical faculty of the University of California, San Francisco and is Director of Developmental Primary Care.
Continue reading Dr. Clarissa Kripke, Susan Lee, Gordon and Aaron Reetz
Larry Voss and Carol Gill, long-time residents of the Chicago area, both had polio and use wheelchairs. In six video segments, they candidly describe encounters with healthcare professionals and systems that were ill-equipped to provide the care they needed.
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Frances Deloatch was a wheelchair user who lived in the Boston, Massachusetts area. She had Osteogenesis imperfecta (brittle bone disease) and a hearing impairment. Fran passed away in April 2012.
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Nick Ziemer, who is deaf, lives in the Bloomington, Illinois area.
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Jennifer Thomas lives in Arlington Heights, Illinois with her husband and fraternal twins. She has cerebral palsy and uses a wheelchair.
Continue reading Jennifer Thomas